A fund to support children with serious illnesses has been created in Russia

2024 Author: James Gerald | [email protected]. Last modified: 2023-12-17 14:00

News portals reported that a fund has been set up in Russia to support children with serious illnesses. The President of the country signed a corresponding decree. The project, which was known before the new year, has become a reality. Treatment of pathologies that threaten the life of a child is costly. The founder of the fund was the Ministry of Health of the Russian Federation, acting on behalf of the whole of Russia.

What is this organization

Reports that a fund to support children with serious illnesses has been created in Russia did not come as a surprise. Already some time ago, the Ministry of Health of the Russian Federation submitted a project developed by it for consideration.

Despite numerous reports in the media about the existence of the new fund solely due to an increase in the progressive tax, it is planned to provide annual grants from the federal budget, and in 2021 - a significant subsidy and federal property for its productive activities.

A complete picture of the goals and objectives of the work of the fund, called the "Circle of Kindness", can be obtained from the text of the document signed by the Russian leader:

• founder - the Ministry of Health of the Russian Federation, acting in this case as a representative of the state;
• sources of activity - allocations from the federal budget, voluntary donations and other sources of a legal nature;
• the main goals are to provide medical care, medicines, technical means, pharmacological drugs that are expensive or not available on the Russian market, rehabilitation means or restorative measures;
• governing bodies - the expert and board of trustees of the fund, approved by the President of Russia and the chairman of the board, appointed in the same way;
• Board of Trustees - famous people involved in helping disabled children suffering from organ diseases, congenital malformations and incurable diseases.

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Despite the anticipation of this message (the planning became known long before the new year), the Presidential Decree has already determined the candidacy of the President of the charitable organization and the approximate composition of the Board of Trustees. Among the prospective candidates there are people who have long been engaged in such activities and are perfectly familiar with the pressing problems of Russian pediatrics.

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Board of Trustees and Priority Goals

The announcement that a fund to support children with serious illnesses has been created in Russia caused a wide resonance among the public and parents of children suffering from rare diseases.

The chairman of the board was A. Tkachenko, archpriest of the diocese in St. Petersburg, founder of the non-profit institution Children's Hospice and at the same time chairman of the Commission on Charity and Social Activities at the Public Chamber. It is planned to include in the Board of Trustees of the Circle of Kindness:

• K. Khabensky - president of a charitable foundation created at his own expense;
• Ch. Khamatovu - co-founder of a similar organization to help children with hematologic oncology;
• L. Roshal - President of the SMS;
• S. Mitin - President of the Interregional Society of Disabled People;
• E. Petryaykina - Director of the Russian Children's Clinical Hospital at the N. N. Pirogov;
• other people involved in solving pressing problems of pediatrics in the Russian Federation.

The Ministry of Health of Russia should ensure the procurement of the necessary medicines and rehabilitation means, as well as create a single information resource with information about children with diseases, the treatment of which has become the main goal of the establishment of a charitable organization. The message about the signing of the Decree by the President appeared at the beginning of January of the current year, from that moment it has already entered into force.